July 8: Post-Transplant Appointment

I last posted to my blog back in July. It is now almost the end of September. The easiest thing to draw from this is that I am a busy person and do not place a top priority on my blog. The thing you may not think, immediately, is that being healthy does not make for as good of posts (in my opinion).

But, as I was at the doctor the last time I posted, I figured I might as well post about that particular appointment today (while I have a few minutes). My last visit to the nephrologist, for my post-transplant follow-up, was a great visit. My creatinine is at 1.0, which is good to see. My other numbers are all still good as well. I am always glad to see good lab reports as a part of my quarterly visits.

If I remember correctly, I was a bit sick the last time I visited the doctor. I had some sort of sinus infection, which led me to have a chest x-ray. The doctor did not see any signs of problems in my lungs, which was good. I got some antibiotics from my family doctor, and they seemed to clear up the infection fairly well.

The biggest problem with being sick, as a post-transplant patient, is that it takes a long time to get better. Even with medication, I was still coughing for weeks. It means that I have to be more careful when I get sick and make sure I talk to the doctors quickly.

In other news, since my Medicare ran out at the beginning of the year, I have been paying full price for my post-transplant medications. For prednisone, this is not really a big deal. For the Myfortic and Prograf, it is quite expensive. I contacted the two pharmaceutical companies that make those medications, knowing that they offer financial assistance. I received forms from both companies, and sent in the receipts for my medications. I got back a payment of $80 for three months of Prograf. I have not seen anything from Myfortic.

So, I think that posting on Sunday morning works well. I have finished my Bible study for the morning, but am still waiting on Hannah to wake up. If I remember, I'll even update again next week about my 3-month cardiology appointment (and answer some reader questions).

Stay tuned!

Cardiologist Appointment - June 15, 2010

Today is Thursday, July 08, 2010, and I am sitting at the Nephrologist's office with my company laptop and MS Word as my only friend. I realized that I have not blogged in WAY to long, and that it is time for me to update everyone on what has been going on. Today's post will concern my cardiology appointment from almost a month ago. I'll try to get another post later this week (or early next week) so that I don't have too much information in one post.

I saw my cardiologist back in June for my biannual (two times per year, not every two years) appointment with echocardiogram. They have been watching my mitral valve to make sure that everything is still working properly and that I am not getting worse.

Note: I said "they" because I recently changed cardiologists. The doctor that I had been seeing has "retired" to spend more time with her children. I'm all for this, as a principle, but was not overly excited to lose one of my favorite doctors. So, if she reads today’s blog, then she'll know I liked her. My new cardiologist is at the same practice, and was recommended by the previous one, so I'm not too worried about him. He's just new, and I will have to get used to him.

Now, I will get back to the appointment details. I had my echocardiogram, and it seemed about the same to me as all the others that I have received. However, when the doctor came to tell me the results, he had some bad news. It appears that my ejection fraction (I think) has gone from 60 to 70% down to about 55% (based on visual observation). This is not the best direction for that to go.

The doctor told me that he was slightly more concerned, based on the previous echocardiograms that had been taken. He said that he would like to see me every three months instead of every six months. He said that I still have a "moderately severe" mitral valve prolapse, but with the reduced flow through the valve, he'd like to see more often.

At some point in the future, I will need to have my valve replaced. It's not that time, yet, but the doctor wants to be careful and make sure that I do not suddenly have a major problem because of my mitral valve. So, he is going to watch me a bit more closely. I guess I will just have to wait and see.

Overall, it was a good appointment. The whole reason I was going in to have the echocardiogram every six months was to watch my mitral valve and make sure it was not getting worse. Since it has gotten a little worse, they now want to check me more often. Luckily, the echocardiogram showed what it needed to show, and they are now going to check me more often.

One day, I will need heart surgery to have my mitral valve replaced. I'm not sure what that will involve, but I'm sure it won't be pleasant. On the plus side, I've never had open heart surgery, so that will be new. It's always fun to have something to add to my "List of Surgeries."

That's it for today's post. I will have two more blog posts coming up soon, so stay tuned. Thanks for coming by to read.

Posting on Another Blog? What?

Good morning, everyone! It's 5:26 AM (CDT) here in Texas, and I'm writing a blog post.

"Why are you doing that?", you may be asking yourself? I'm glad you asked. A few weeks ago, the author of the distinguished blog http://parentingbydummies.blogspot.com/ sent me an e-mail asking if I would be willing to put up a guest post on her blog talking about what it is like to be a blogger, a parent, and a kidney disease patient. I think I may have failed her on two out of the three, but at least I know what the third thing (kidney disease patient) is!

"That's great, but it doesn't really tell me anything," you may be saying at this point. You're correct. I'm typing up this blog post early in the morning because my guest post should be appearing today on her blog, and I wanted to one billion readers that all came over here to visit to have something personal to read.

Please note: One billion is an approximation. I did a rough estimate that one in four people that see a link in a blog they like will follow it. I am also guessing that the aforementioned http://parentingbydummies.blogspot.com/ has four billion daily readers. My guess may be off by one or two (I didn't count heads or look at her blog stats).

I know the real reason you came by today. You were hoping that I found the pictures of my kidney that I scanned all those years ago. You are in luck! I found them, and will link to the photos, here. I didn't want to scare anyone off, so you actually have to click to see anything gross/awesome.

http://picasaweb.google.com/nmccart/NathanSKidney?feat=directlink

If you are still here, congratulations! If you had to clean vomit off of your keyboard, I am sorry. I vomited for about a month prior to having that removed (ugh).

Anyway, thank you all for coming by today. I just wanted to say that I am VERY thankful to God for all that he has done for me. I am alive today, which is wonderful. I have a beautiful wife and a wonderful (hopefully) daughter. I have a great church family, and a faith that helps me stay strong.

Enjoy the blog, and post comments anywhere you wish!

Please note: I plan to go back and edit this post later today once I get the direct link to my guest post on http://parentingbydummies.blogspot.com/

READ THE GUEST POST HERE:

http://parentingbydummies.blogspot.com/2010/03/make-new-ifriends-monday-polycystic.html