Tuesday, February 7, 2006

Well, it’s Tuesday morning and, if you have been reading along, you will know that I still have the perm-cath in my chest. The nephrologist did not come by dialysis last week (at all), so I am hoping that he will be by at least once this week. If I get to see him, then maybe he can schedule an appointment for me to have this catheter removed and let me go back to my dialysis-normal life.

I used 17-guage (small) needles the first week that I went back to my fistula. Then, last week, I was up to 16-guage needles. Today, I am wondering if they are going to finally put me back on 15-guage needles (the largest size we use at our clinic). Once they have used the 15-guage needles on my fistula at full speed for a couple of days, then they will test my flow rate to see if my revision put me over 400. My old rate was under 300, which was not what they wanted. The higher the flow rate, the better possibility you have for dialysis. So, it should be back to larger holes in my arm today (which is always great, don’t you know).

I joined a few dialysis e-mail groups last week. Now, every time I open up my Inbox, it is filled with messages from people who are on (or know people on) dialysis. There has not been a lot yet that has been useful to me, but I am hoping to learn more from this community of people that are going through the same experiences as I am. That is kind of why I write this blog. I want to share my experiences with others and help them to see what I go through and how God helps me through it.

Speaking of which, please continue to pray about my transplant. If God does not have healing planned for me, I would love to get a new (well, used) kidney. Since my approval is complete, all I am waiting for now is for my potential donors to get tested and find out if someone can donate. I know that God has a perfect plan laid out for me; I just have to wait and see what it is. Help pray that I am patient during this waiting.

Thanks for coming by to read today! Enjoy your dialysis-free evening.

January Comments Review

Well, it is time once again to review all of the comments that I have been receiving. I know that not everyone who reads my blog reads the comments, so I thought that I would review the last several that have been posted, as well as a couple of responses.

Oh, by the way, I posted last night that the doctor was supposed to come by the clinic and schedule a time to remove my chest catheter (since it is no longer needed). The doctor did NOT come by the clinic last night. I hope that means he will be by twice next week, as I pay $80 a week to see the doctor. This also means another week (at least) with the catheter. I did take home the betadine and clean it myself this morning, since the technicians had forgotten or run out of time twice this week. New bandages are always nice.

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At 1:23 PM, Nephronurse said...

Did anyone ever offer you the option of peritoneal dialysis?

At 9:15 AM, Nathan said...

When I had my nephrectomy in June, the doctor said that I would soon be in need of dialysis. However, since I had just had my abdomen torn open (from my sternum to my navel), I was told that PD would not be a good option. Also, since I suffer from Polycystic Kidney disease, most of my peritoneal cavity is filled with my remaining kidney (it's large). Does that answer your question?

At 7:55 PM, Nephronurse said...

Yes, that's what I suspected was the case. I just wondered if it had even been mentioned to you. I have seen a lot of patients that have never been told about it. I have also seen people with PKD do quite well on PD.

(Comments were taken directly, since I answered that question in a comment).

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At 7:05 PM, Danielle said...

Hi Nathan. I found your site quite by accident...then, God makes no mistakes. I will be praying for your health and well-being and will continue checking out your blog. Thank you for sharing your story.

"His glorious power will make you patient and strong enough to endure anything, and you will be truly happy." Col. 1:11

"Live long and prosper." Mr. Spock

Danielle has told me the best thing that I can ever hear. I love to know that someone is praying for my health and recovery. I am thankful to be living in a time when people that I do not know can pray for me, since we both know the same God. And, of course, how can I not like someone who quotes Star Trek!

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At 11:13 PM, Nephronurse said...

Hi, Nathan
I tried to post a comment once already and I am not sure if it went through so I'm trying again. The trials you have had with your fistula inspired me to post about vascular access on my blog. Please let me know if you think it is helpful or not.

I did actually read through Nephronurse’s Blog. She had some interesting insights about vascular access, some of which I will never see, since I only have the one fistula. She encounters many more patients that I do, and has a better opportunity to see problems and solutions. This is one blog that I have added to my regular reading list, and I plan to keep up with her posts.

16 Gauge Needles Again

I am in dilaysis again tonight, posting from my chair. They are using the 16-gauge needles again tonight. I was on the 15's for one week, and I imagine that I'll be on the 16's for one week. The doctor did not come Tuesday, so he should be here today. Hopefully he will set me up to have my chest catheter removed (which will be nice). I am looking forward to a real shower again.

I had a new person comment on my blog. She is a nurse at a dialysis clinic. I can't see my other pages right now, but you can check my previous posts to get to her site.

I also joined three Yahoo! discussion groups for kidney disease patients. I hope I will learn more of what to expect from their collective intelligence. And, yes, I think that the Borg had a few good ideas. Collective intelligence would be a huge bonus. I guess that the Internet is another step towards having the collective knowledge of the world available at my fingertips.

Well, I've got 1 hour and 40 minutes left in my treatment, so I'll go back to that. I'm watching Disc 4 of Season 1 of Dark Angel on my DVD. It's a pretty good series (at least Season 1) that I missed the first time around.

Keep praying for my continued health as I await a kidney transplant. I mailed out the applications to those that asked. Thanks!